期刊导航

论文摘要

115例唇腭裂患者的父母生活质量调查研究

Analysis of quality of life of 115 parents with cleft lip and/or palate children

作者:张艳艳 龚彩霞 武红彦 陈莹 张晓琳 梁玉叶 哈品 石冰

Author:Zhang Yanyan, Gong Caixia, Wu Hongyan, Chen Ying, Zhang Xiaolin, Liang Yuye, Ha Pin, Shi Bing.

收稿日期:2014-09-18          年卷(期)页码:2015,33(2):169-169-173

期刊名称:华西口腔医学杂志

Journal Name:West China Journal of Stomatology

关键字:唇腭裂,年龄,父母,生活质量,

Key words:cleft lip and/or palate,age,parents,quality of life,

基金项目:

卫生部口腔颌面外科国家临床重点建设专科基金资助项目(2011)

中文摘要

目的 了解唇腭裂患者的父母生活质量状况,探讨其影响因素,为改善唇腭裂患者父母的生活质量、促进唇腭裂患者健康成长提供理论依据。方法 选取115名唇腭裂患者的父母为试验组,另选198名成人(孩子健康且年龄段与试验组相仿)作为对照组。试验组按照唇腭裂类型分为3个亚组:单纯性唇裂伴或不伴牙槽突裂组(CL)、单纯性腭裂组(CP)、唇腭裂组(CLP),试验组和对照组均按照患者年龄分为4个亚组:0~1岁、1~3岁、3~6岁、>6岁;按照学历分为初中及以下学历、高中及中专学历、大专及以上学历。采用生活质量综合评定(GQOLI-74)量表对试验组和对照组进行测评。使用SPSS 16.0软件进行数据分析。结果 1)试验组与对照组总体及各年龄段的各项得分均无统计学差异。2)不同唇腭裂类型患者的父母GQOLI-74量表各项得分均无统计学差异(P>0.05)。3)3~6岁患者的父母在生活质量总分、心理功能维度及社会功能维度得分上低于>6岁患者的父母(P6岁患者的父母(P结论 唇腭裂患者父母的生活质量与正常儿童父母无明显差异;低年龄段唇腭裂患者的父母及低学历父母的生活质量需要得到更多的帮助和支持。

英文摘要

ObjectiveTo investigate the quality of life of cleft lip and/or palate children’s parents and discuss the factors to provide the oretical basis for improving the quality of life of these parents and promoting the healthy growth of children with cleft lip and/or palate.MethodsA total of 115 parents whose children had cleft lip and/or palate surgery treatment were selected as the experiment group, and another 198 parents (with healthy children having a similar age with those in the experiment group) as the control group. The experiment group was divided into three subgroups according to different types of cleft lip and/or palate: cleft Lip (CL), cleft palate (CP), cleft lip and palate (CLP). The experiment group and the control group were both divided into four subgroups according to age:0-1, 1-3, 3-6 years old, and more than 6 years old. The experiment group and the control group were both divided into three subgroups according to education: junior middle school and the following, high school and technical secondary school, junior college degree or above. The GQOLI-74 scale was selected to assess the experiment group and the control group. SPSS 16.0 software was used to analyze data.Results1) The experiment group had no significant difference with the control group in terms of the overall score and the scores of various children ages. 2) The scores of every item had no significant difference in CL, CP, CLP subgroup (P>0.05). 3) The quality of life scores and scores of psychological function dimension and social function dimension of parents with 3-6 years old patients were obviously lower than those of parents with more than 6 years old patients (PConclusionNo difference was observed in the quality of life between cleft lip and/or palate children’s parents and normal group. The parents with the low age children with cleft lip and/or palate and low-levels of education need more help and support to improve quality of life.

关闭

Copyright © 2020四川大学期刊社 版权所有.

地址:成都市一环路南一段24号

邮编:610065